Phil Dwyer

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Phil Rossall, a 67-year-old retired teacher and welfare of Kent, was The First diagnosis with motor neurone disease (MND) in the year 2016.

To say The Time , doctors told him, he had only "one or two" years.

Four Years have passed since his diagnosis, and he is now able to move his limbs or breathe without a ventilator.

But he refused, and the disease break his spirit, and to smash Last Year finally, two Guinness World Records for running marathons in his wheelchair.

Phil says that it has become harder to keep track of how far his disease has progressed: "I do not notice day-to-day changes, but then, Looking Back to the beginning of this year is a scary experience for me," he told The Bbc .

MND is a degenerative and often rapidly progressive disease. Due to its nature, the with the condition have an increased risk of complications if they catch a respiratory infection like Covid-19.

Phil and his partner, Brenda, were self-isolation for The Last month.

"The forced isolation has meant that my blog and book, The Most important retreat from a world of lifts, wheelchairs, and face masks were," He Said .

"My speech is completely incomprehensible, to write, is now my only form of communication with the outside world. I miss my St Christopher ' s maintainer and the MND Association visitors, but my heart goes out to people who are desperately ill and who feel abandoned by their own government. "

'Mixed Messages '

Despite relying on a ventilator to breathe, Phil was not in the government's list of who should be shielding. He says that the government is advise, since the Corona Virus began an outbreak has felt like a series of "Mixed Messages ", leaving him and his partner insecure about his situation.

"I have two post-graduate diplomas and worked as a research manager, and I Am still very confused," He Said . "To see that I rely a debilitating disease, and I'm on vent 24/7, I was expected to contain, but instead, I was in the 1. 5 million most vulnerable in the country. All I can say is that there are a lot of very sick people. "

While the disease is on the NHS in England list of underlying health conditions, it has yet to be explicitly named on The List of those who should be "shielding".

The advice about whether MND patients should be on the screening list has said, it depends on The Stage of the disease.

Phil don't know why MND does not contain the "weakest" list,

is The MND Association, a dedicated charity, the care and protection of the people with the disease, told The Bbc it was flooded, affected and upset patients and families.

"Many are afraid of the coronavirus, to catch, to know, the consequences can be catastrophic," said head of policy and campaigns, Susie Rabin.

you said More Than 3,500 of The Charity supporters had E-Mail your members you are invited to add questions, health Minister Matt Hancock MND, "extremely vulnerable" list.

"Not automatically added to the means extremely clinically prone to shielding and protective list, that the people are struggling to food and essential medicines supplied, particularly if you live alone.

"people with MND died Covid 19 already. We want to be shielded all of the people with MND and protected from this disease.

"We believe that the inclusion of at risk to "extreme" - list is the safest and most appropriate option for people with MND.

"It must allow for more support for social care workers and more adequate provision of PPE for the nurses both in nursing homes and in a home environment to support you and the care of disabled people. "

"Vital service'

As his main reference person, Phil 's partner is not able to leave him alone in The House . Because of this, the couple rely on a delivery from your local supermarket, in The Last three years.

But, due to not classified as "extremely vulnerable", which is said to have been by the government, the couple that you are not entitled to a delivery slot.

"it's The fact that I received a vital service, to the "extreme danger" rules came remains. Whether the failure of the MND of the official screening list was the result of incompetence, ignorance, or prejudice, don't care.

"I'm not going to starve. But for the First Time in My Life , I feel I Am a victim of discrimination. I never get angry. I may be mistaken, but I don't feel count, I Belong to a group that's not worth the trouble, because we'll be dead soon, anyway. "

He felt compelled to send the matter into his own hands, and only after he had asked his Advisor, a supportive letter to his doctor, he finally received the call to tell him he had been on The List .

Case-by-case basis

A spokesman for The Department of health and Social care, told The Bbc that patients with MND are evaluated on an individual basis.

"medical experts have identified certain medical conditions that protect someone with the greatest risk for severe illness from Covid-19, which means you are clinically extremely endangered and need to.

"The List will continue to be checked, and the doctors are also human, the shield, depending on your individual circumstances to identify. "

Those who are not classified as "extremely vulnerable", but have underlying health conditions, are still recommended to keep, to stay-at-home policies, he added.

Despite his victory, Phil says he is concerned that others like him may not be So Lucky .

"I'm still concerned that Other People with this terrible disease do not have the support that I have. "

He added: "I'm still angry that the government forget the consultants, some of The Most vulnerable people in the country and ignored our requests for so long. Certainly, it should not be so difficult. "

self-isolation, coronavirus pandemic, motor neurone disease, shielding, disability

Source of news: bbc.com