Barry Sembène

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Bex Price -is a rare, life-threatening condition that means they spent a lot of Time In the hospital

"We didn't really want to use a different roll of the dice, if we are honest. "

Janine Price and her family from Barry - know How To beat The Odds .

It took 22 different medical professionals to diagnose their 14-year-old daughter Bex with a rare, life-threatening condition.

Now, three years after She was rushed to Great Ormond Street Hospital by ambulance, The Family are dealing with the new threat by coronavirus.

Bex of pulmonary hypertension has on your heart and lungs.

In December of 2016, She was so sick, She could not have anesthesia once, fully, before you saving emergency treatment, to your life.

The Family spent Christmas in the hospital this year, and She now relies on intravenous medicine 24/7.

'Traumatic' treatments

"I think I'm one of the unfortunate lot, but it is okay for me, since it Said only one thing, and I'm fine," Bex .

"Since I have been on my medication, I have done a lot better and I can do things with My Brother - we play basketball a lot in The Garden .

"But, because of my condition, we decided to isolate that quite a bit earlier than all the others.... and it makes us go to stir a little bit crazy. "

Bex -Price , left, with her parents and her Brother , Sam , decided to isolate themselves, earlier than Most People ,

Mrs Price Said : "We have already Said , the rarity of Bex 's condition truly makes her one in A Million .

"was The girl one of us met, and what they are are pushed through, quite frankly, a traumatic experience, especially a brain MRI, and yet She continues to smile, be funny, be positive and live your best life.

"Bex is our Inspiration - She was really amazed us. Your Brother is also. It is terrible to treat a lot of for him, as Well . "

The Family spent Christmas of 2016 in the hospital

insulation for The Price family began early, on 13 March, when they were aware of the fact that the underlying health conditions that can be deadly in The Best of times, let alone.

Bex also needs regular blood tests, to a makeshift "drive-through" experience recently.

"The Children 's hospital for Wales arranged for us to drive to the side of The Building , so a nurse might be blood, but do it quickly, And Then head to Said rear of a fire Manager to minimize The Number of people we came in contact," Mrs Price .

Bex says drugs allowed, you get used to your condition

"If Bex s glasses is broken, we could not simply go to Specsavers, we had to leave, the glasses on The Bench in front of the be repaired and returned to us.

"If The Dog was sick, The Other day, we were able to not only take him to The Vet , we had him on medications.

"life has really changed and it's the little things aren't so simple. "

Sam Price was to distribute videos to The Time , Both Mrs Price and Bex s during lockdown

dad Gavin are the work of the teachers at a local University and juggling looking after The Children , the Remote, and keep you motivated your students.

her son Sam , 13, with insulation as an Inspiration for a video diary online, where Bex featured most recently as his makeshift hair salon.

he says he does, He finds his friends and is not able to just "pop shop" when he wants something.

"Stolen" childhoods

Mrs Price Said : "Sam is a complete and utter social animal - he has a fantastic group of friends that he has in his football, he all The Time , so this was a real Problem.

"you wonder whether this is the childhood summer Stolen Away from them. "

Wales is in Lockdown on Monday, 20 April at 20:30 BST on Bbc One Wales and on the.

coronavirus pandemic, barry

Source of news: bbc.com